{"id":2821,"date":"2021-03-29T17:45:35","date_gmt":"2021-03-29T14:45:35","guid":{"rendered":"https:\/\/www.syppadremia.gr\/informational-material\/useful-tips\/"},"modified":"2023-02-09T16:44:48","modified_gmt":"2023-02-09T14:44:48","slug":"useful-tips","status":"publish","type":"page","link":"https:\/\/www.syppadremia.gr\/en\/sickle-cell-disease\/informational-material\/useful-tips\/","title":{"rendered":"USEFUL TIPS"},"content":{"rendered":"<div class=\"wpb-content-wrapper\" id=\"wpb-content-root\"><p>[vc_row][vc_column]<div class=\"standard-arrow list-divider bullet-top\"><ul>\n<li>\u2022 Be well hydrated on daily basis with water, fresh juices and beverages especially during summer time.<\/li>\n<li>\u2022 Do not swim even if you feel slightly tired Shield yourself in order to feel better tomorrow!<\/li>\n<li>\u2022 The last time that you consumed alcohol, did you suffer from acute pain? Next time have fun by drinking a non-alcoholic beverage, preferably fruit based.<\/li>\n<li>\u2022 Your friend wants to go hiking in the mountain with you. Do you feel concerned that the altitude will make you feel uncomfortable? You should rather choose a lower altitude area to spend the night.<\/li>\n<li>\u2022 You\u2019re not allowed to do scuba diving. The reason for this is that your body is facing increased under-water pressure, hypoxia, physical exertion and dehydration, a very dangerous combination for your health condition.<\/li>\n<li>\u2022 Excessive heat and humidity bother you. Preferably stay at home during those days. Also air conditioning is a great help in that time.<\/li>\n<li>\u2022 As you grow older, you learn to accept and love yourself and you feel the disease getting more intense, the need to take care of yourself also intensifies. You shouldn\u2019t defy the disease but, to embrace it. Love is the cure. And above all, the love for ourselves!<\/li>\n<li>\u2022 You always argue with your mom and she doesn\u2019t let you do anything. Why she doesn\u2019t understand that you don\u2019t want to differ from other people? Next time, discuss calmly together about your boundaries and she will trust you not to exceed them!<\/li>\n<li>\u2022 When you were a teenager they informed you about the possibility to get admitted to higher education through favorable arrangements due to your condition. Also, about the substitution of military service that may have caused to you more health problems.<\/li>\n<li>\u2022 Now that you grew older, it\u2019s time to find out what applies for you in employment, insurance, tax, retirement and other subjects that you\u2019re entitled to.<\/li>\n<li>\u2022 Career guidance is a matter of particular significance for you. That\u2019s why you need a job that, besides remuneration, will complement you and encourage you to overcome mental and physical fatigue without stressing your health.<\/li>\n<li>\u2022 Welcome autumn! Vaccination season!<\/li>\n<li>\u2022 \u201cTomorrow is my doctor\u2019s appointment for the regular health screening.<\/li>\n<li>Yesterday, during exchange transfusion, I had a very interesting talk with another patient. Eventually, time passed by very quickly and more pleasantly.\u201d<\/li>\n<li>\u2022 When it\u2019s too cold outside, you should dress warmly in order to shield yourself. However if you are heated-up you should remove some clothing.<\/li>\n<li>\u2022 Sometimes your friends jokingly refer to you as germaphobic. . It\u2019s okay because it\u2019s a joke. In any case, during the COVID-19 era, disinfection and hand sanitizing is a good habit.<\/li>\n<li>\u2022 When you feel sore, a gentle massage may be good and beneficial for you. It makes you feel relaxed.<\/li>\n<li>\u2022 Very often the use of relaxation techniques, such as deep inhales and exhales, therapeutic visualization, simple yoga exercises, walking in nature, may relax you, motivate you, increase your energy levels and blood circulation and reduce the stress hormones.<\/li>\n<li>\u2022 When you feel sore, drinking a warm decoction of chamomile or any herbal beverage can help you feel calm because if you\u2019re not feeling calm and relaxed the pain becomes worse. Other patients tend to use warm compresses and relaxing breathing exercises.<\/li>\n<li>\u2022 During acute pain make sure that you have the appropriate analgesic regime and in case that the pain doesn\u2019t subside, call your doctor and if needed get to the hospital in time.<\/li>\n<li>\u2022 During breathlessness, extreme tiredness or unprecented discomfort, you should call your doctor.<\/li>\n<li>\u2022 \u201cWhen in pain, it helps me to do something pleasant (watch a movie, listen to music etc). This way, I forget that I\u2019m in pain for a while.\u201d<\/li>\n<li>\u2022 \u201cWhen I feel that the pain is about to start, I take a small quantity of L-glutamine because from what I\u2019ve seen, it helps me during acute pain.\u201d<\/li>\n<li>\u2022 Another patient takes hydroxyurea and doesn\u2019t suffer from the pain anymore. I will discuss with my doctor about this method.\u201d<\/li>\n<li>\u2022 \u201cNow that I\u2019m pregnant, the collaboration between my hematologist and my gynecologist is essential in order to make things work for me but also for my baby.<\/li>\n<li>I keep a personal record containing the examinations, hospitalizations and medicine that I take and also every medical intervention. It\u2019s very helpful for every doctor that sees me and doesn\u2019t have immediate access to my medical file.<\/li>\n<li>In order to organize my regular monitoring I choose a well-organized SCA Unit that is connected to a general hospital. Such units are located in Athens but in other cities also.\u201d<\/li>\n<li>\u2022 You should not forget getting informed by our association regarding the developments related to the disease, the new treatments and the benefits but also about our routine.<\/li>\n<li>\u2022 Having the support of your family and friends, through thick and thin, you can overcome the boundaries of the disease and bring out the best in you.<\/li>\n<li>\u2022 Sometimes you may be in emotional distress. Problems that derive from the diseases\u2019 consequences and other external factors get fed back and enlarged and eventually we may not have the power to deal with them by ourselves. At that time, the best solution is to seek help from a mental health professional. Furthermore, many psychotherapeutic approaches may help you manage more efficiently the negative feelings about yourself (stress, fears etc.) and sickle cell disease consequences in your everyday life. Besides, inner peace contributes to our wellbeing, vitality and balances our mental and physical health.<\/li>\n<li>Choose to live a life without fear and stress because that\u2019s what weakens your immune system and may also provoke more problems to your health.<\/li>\n<li>Choose to be optimistic and foster in yourself positive vibes of love, gratitude, joy, pleasure and hope because this way you will feel wellness, vitality and mental clarity. Optimism also eliminates stress and sadness and contributes to a better health condition and less painful episodes.<\/li>\n<\/ul>\n<\/div>[\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>[vc_row][vc_column][\/vc_column][\/vc_row]<\/p>\n","protected":false},"author":9,"featured_media":0,"parent":2818,"menu_order":1,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2821","page","type-page","status-publish","hentry","description-off"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>USEFUL TIPS - SY.P.PA.DRE.MI.A. - Panhellenic Association for the Protection of Patients with Sickle Cell and Micro-Sickle Anemia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.syppadremia.gr\/en\/sickle-cell-disease\/informational-material\/useful-tips\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"USEFUL TIPS - 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