SY.P.PA.DRE.MI.A. was founded in 2005 on the initiative of sickle cell disease sufferers (Sickle Cell and Microdrepanocytic Anemia). It is the only panhellenic association that exclusively represents sickle cell disease patients.
In the complex societies where we live and especially in the context of today’s difficult socio-economic conditions, problems can only be solved with the active participation of citizens and through collective actions. The οrganization, therefore, is the most important space for the representation of the sufferers.
Our guide is the dream for a better today, for a better now!
Purpose
The main purposes of SYPPADREMIA are:
Improving the quality of life of patients in every possible way
The multifaceted support of patients and their environment
The defense of their rights
Strengthening their independent living
Informing the public
Actions
More specifically, the association’s actions focus on the following areas:
Informing and enlightening public opinion about sickle cell disease, its problems, treatment and prevention (through press releases, informational activities, etc.).
The promotion and promotion of collective action and collegial solidarity.
Care for the improvement of the treatment of patients (e.g. conditions of care and hospitalization, treatment of painful crises, compliance with the conditions of the Institutional Framework in the Sickle Cell Disease Units) by any appropriate means.
The association’s contribution to the formation, completion and amendment of the legislation concerning sickle cell and micro sickle cell anemia with the aim of a better quality of life.
The participation and cooperation of the association with scientific organizations and in general with any related body related to the disease, for continuous information of the members on the new developments and the joint more effective treatment of the disease with new improved treatment methods.
All kinds of activity for the promotion and development of scientific knowledge about the disease (research, studies) and the organization of scientific/informative conferences and workshops.
Certifications
The Panhellenic Association for the Protection of Patients with Sickle Cell and Micro-Sickle Anemia is certified by the Ministry of Labor and Social Affairs with the Special Certification of Primary Social Care of the non-profit N.P.I.D. (No. D14/18774/178, ΦΕΚ 2341/ 16-6-2020/issue B’) as a provider of Primary Social Care services and has submitted an application for inclusion in the National Register of Private Non-Profit Bodies.
